For years, the ALSFRS has been the standard for tracking the disease progression of people living with ALS. But researchers are looking for less subjective methods.

The ALS Therapy Development Institute (ALS TDI) is proud to announce that it will lead all research operations for Champion Insights—a new study planned to launch this fall in partnership with Answer ALS and Augie’s Quest to Cure ALS. This effort aims to uncover critical genetic and metabolic factors that may help explain the significantly higher incidence of amyotrophic lateral sclerosis (ALS) among endurance athletes, military service members, and other potentially high-risk groups.

An exhibit of photos documenting Rusty Costanza's life with ALS, Love in the Face of ALS: A Photographic Journey, is on display at the St. Tammany Art Association Gallery in Coving, LA, through May 27, 2026.